I don't get headaches from exercise. Muscle aches, joint aches, yes, but those are mostly after I've finished the bike ride. The stiffness and soreness extends for a day or two, and usually clears up when I start out again. Don't keep track of my heart rate -- no monitor.
Okay. When my heart rate gets into the 140s and 150s, I know it. I don't know how fast - that's why I wear the heart monitor - but I can feel that it's going pretty fast.
Do you ever have that sensation (probably when biking uphill, into a headwind - both ways, I'm sure!)? If not, these aren't the same kinds of things, but thank you for reminding me to think about body aches and such, too; I have to remember them.
I know my pulse rate is elevated when I get to the top of a hill, yes . . . never tried to either count it or wear a monitor. My resting rate is low, 55-60, and my blood pressure is low. In fact, my wife made me get my thyroid count checked.
"Normal" is different for everybody. Because you have been undiagnosed for so very long, "normal" for you may well be unlike other people's "normal."
When I'm dealing with asthma, I tell the doctor something like your description above--"when I do X, I feel Y immediately and Z later on. I can live with Y but Z is bad. Can you fix it?" The last time I did that, she found ways to fix both Y and Z.
The important thing is that your doctor should listen to you and try different things based on what you say. If not, get a new doctor.
It's true, but fatigue and exercise recovery are two things that I know will be directly impacted by my treatment. So I need some guesses for what I might expect if I was "normal", so I don't under or overshoot.
Wouldn't it be more useful if you gave them the unfiltered data? "Here's what I do; here's how I feel."
Well, the data has to be filtered in some way. It's like the old joke, "after this operation, will I be able to play the piano?" "Well... sure!" "Good, because I could never play it before!"
I saw one scale for exercise that was pretty good. It said rather than measuring VO2max (whatever the heck *that* is) and heart rate, one could ask a person to rate a workout from 1-10, where 10 is something like running all out, as fast as you can, as long as you can, and 1 is a gentle walk. And the suggestion I recall was that one should be able to to hit 7-8 for about 20 minutes, or something is wrong. Now, for some people, 7-8 would be a really brisk-for-them walk, for me it would be a slow run - ten minute miles, maybe 9 minute miles if I was doing really well.
But there's a problem, here. I'm *used* to feeling like crap. I have a hard time saying "wow, I feel like crap when I'm exercising, I guess I'm going too hard." If I stop doing things because doing them makes me feel like crap, I'm in big trouble. So I'm not sure if I'm really hitting 7, or 8, or if any normal person would say "Dude! That's a 9, closing on a 10!"
So I'm trying to learn what level of crap-feeling is normal. Because I don't think that's what a family doctor or GP or PCP or whatever is trained in.
Sometimes yes, sometimes no. Which is not much help for you, I know, but still. Sometimes I have a good brisk walk on the treadmill, using the "enough breath to talk but not to sing" criterion, and the next day I feel energized, virtuous and creative. Other times - and with no specific difference that I can discern - the next day I'll ache all over and spend half the day in bed. And sometimes it makes no difference at all.